VIRTUAL CONFERENCE
Registration has been extended! You now have until October 14, 20222
What is the ACTION in Child
Health Research Symposium?
The inclusion of the patient
and family perspective in planning and doing child health research improves
research quality, relevance, usefulness, and dissemination. Over the past 20
years, with the support of engaged patients, families, researchers, institutions,
and initiatives such as the CIHR Strategy for Patient-Oriented Research (SPOR),
advances on how to include the patient voice in all areas of research have been
made. Meaningful engagement comes from the partnerships formed between
researchers, patients and families at the study team level. However, the work
of advancing patient and family engagement cannot only depend on research
teams. The ACTION in Child Health Research Symposium is an inaugural gathering
of patients, families, caregivers, researchers, and administrators, who wish to
work together to improve the practice of patient engagement in research in
Ontario. The symposium will be an annual conference to advance the practice of
patient engagement by learning from those doing this work and developing
initiatives to improve patient engagement in child health research in Ontario
and beyond.
Using
the Experience of Partnering in Child Health Research to Improve
Practice
Symposium
Objectives:
- Highlight the value of patient engagement in
child health research from multiple perspectives (patient, family caregiver,
researchers, clinicians, support staff and hospital
administrators)
- Provide
researchers, patient/family advisors, and trainees the opportunity to engage in
hands-on engagement through simulation activities
- Identify current challenges in patient
engagement practices/activities
- Advance the
practice of patient-oriented research through the co-creation of practical
tools, guidance documents, and proposed solutions for current challenges in
patient engagement practices/activities
By attending this
workshop, participants
will:
- Have the
opportunity to learn from leaders in the field of patient engagement
- Have the opportunity to network and connect with fellow
patient and family caregiver advisors, clinicians, researchers, and patient engagement
specialists, looking to improve the practice of patient-oriented research and
patient engagement in child health research
- Share their
lived experience with patient engagement to advance the practice and contribute
to work on policy briefs, academic publications, best practices, and
infographics emerging from conference discussions
Who should attend?
- Persons
interested in patient-oriented research and patient and family engagement in
child health research
- Persons with
experience in patient and family engagement in child health research (e.g.
youth, parents, caregivers, clinicians, researchers, research
trainees, early career researchers, hospital administrators and engagement
professionals)
- Persons interested in sharing their
experiences of patient engagement and/or patient-oriented research and
networking with others with similar experiences
- Research
teams (patients, families, researchers and support staff) who have worked
together are recommended to register as a group
What will attendees get to
do?
- Persons
interested in patient-oriented research and patient and family engagement in
child health research
- Persons with
experience in patient and family engagement in child health research (e.g.
youth, parents, caregivers, clinicians, researchers, research
trainees, early career researchers, hospital administrators and engagement
professionals)
- Persons interested in sharing their
experiences of patient engagement and/or patient-oriented research and
networking with others with similar experiences
- Research
teams (patients, families, researchers and support staff) who have worked
together are recommended to register as a group
- Participate
in a full day workshop either in-person (at the SickKids Research Institute) or
over Zoom on Saturday, October 22, from 10am-4pm
- Engage in
interactive engagement activities that will demonstrate the value and ongoing
challenges with engaging patients and families in research
- Contribute to
small and large group discussions to share lived experiences, identify current
challenges in patient engagement practices/activities and propose solutions
(Proposed discussion topics include, funding and support, sustainability,
engaging youth, the potential of technology and social media for patient
engagement)
- Co-design practical tools, guidance
documents, and solutions to tackle current challenges in patient
engagement
What will the day look
like?
| 9:30 –
10:00 |
Registration
Virtual
attendees will have the option to log in and watch video reels and network online via
chat.
|
| 10:00 –
10:10 |
Welcome &
Agenda |
| 10:10 –
11:00 |
Keynote
Address
Sue Robins
Author of Ducks in a Row: Healthcare Reimagined
"Patient Engagement For The Win"
|
| 11:00 - 11:15 |
15 Minute
Break |
| 11:15 – 12:35 |
An interactive facilitated
discussion
The Current State of Patient Engagement: A view
from the field
|
| 12:35 - 13:30 |
LUNCH
All attendees will have access to optional networking and knowledge-sharing
activities
|
| 13:30
– 14:00 |
Introduction to small
group discussions
How to create actionable
change
|
| 14:00 - 14:30 |
Breakout
Groups
Part 1: Focusing on a solvable
problem
|
| 14:30 - 14:40 |
15 Minute
Break |
|
14:40 - 15:30 |
Breakout
Groups
Part 2: What do we need to solve the
problem?
|
| 15:30 – 16:00 |
Sharing
Findings & Wrap-Up |
| 16:00-16:30 |
Open virtual networking |
How much does it
cost?
The symposium is free. There are no
costs to attend. A limited number of accommodation support bursaries are available for patients and families to facilitate attendance at the
symposium. Bursaries will cover costs for childcare, eldercare, nursing supports or other support requirements. Please indicate your requirements when completing your application.
Attendance capacity for this conference is
limited, so complete your application of interest early! Your
submission of interest will be reviewed upon receipt by patients, family
caregivers and symposium staff, and you will be informed via email no later
than October 7th, that your slot is confirmed.
Registration has been extended! You now have until October 14, 2022
This event is sponsored by: