Patient and Family Engagement Support
• Patient and Family Engagement in Research
Reflections on Five Years of Family Engagement in Research TAKE A LOOK
o Raise Awareness of patient-oriented research in child health through symposia, seminars, workshops, webinars
o Training in patient-oriented research via PORCCH (patient-oriented research curriculum in child health)
* Research 101 (parts 1 and 2) developed for patients and families
* Patient Engagement 101 (parts 1 and 2) developed for researchers
* Methods of patient engagement
o Consultation on Patient and Family Engagement - incorporation of the patient and family perspective in child health research via
* Protocol review
* Grant review
* Document review
* Identification of patient partners
o Leadership in patient-oriented research in child health research
* Family Leader Coordinator (Research) – CHEO
* Patient & Family Engagement Coordinator (Research) – SickKids
* Family Leader Program
* Family Advisory Networks
• Are you considering starting a Family Engagement in Research (FER) program at your institution?